Genetic Testing And The Use Of Information
(Clarisa)
This book presents the thinking of six distinguished scholars about key ethical and policy issues related to genetic testing, including genetic privacy, the regulation of genetic testing, and genetic discrimination.
Clarisa Long edited the volume and contributed the introduction. She worked on this project as an Abramson fellow at AEI, and she is now an associate professor of law at the University of Virginia and a research fellow at the Kennedy School of Government at Harvard University. The other contributors are Ellen Wright Clayton, an associate professor of both pediatrics and law at Vanderbilt University; David Korn, the senior vice president for biomedical and health sciences research at the Association of American Medical Colleges and the vice president, dean, and professor of pathology emeritus at the Stanford University School of Medicine; Philip R. Reilly, executive director of the Shriver Center for Mental Retardation; Karen Rothberg, the Marjorie Cook Professor of Law and the founding director of the law and health care program at the University of Maryland School of Law; and Michael S. Watson, the vice president for laboratory affairs and a director of the American College of Medical Genetics. The following summary is based on Long's introduction to the volume.
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